LD26016: Suffering from congenital hemolytic disease, a baby boy in Dien Bien needs help

Duy Dũng |

Dien Bien - Ms. Choi's family has been economically exhausted after 9 years of treating her son with congenital hemolytic disease.

Suffering from congenital hemolytic disease, Lo Van Nhat (born 2016, residing in Na Pan village, Muong Nhe commune, Dien Bien province) must have periodic blood transfusions for life to maintain life.

After 9 years of putting all their strength and assets into treating their child, the poor family in this mountainous province has fallen into exhaustion and needs the joint help of the community.

Ms. Lo Thi Choi's family (born in 1991, Thai ethnicity) has 8 people, including an elderly mother, a couple and 5 children of school age. The life of the whole family depends only on the barren fields and precarious labor costs.

For many consecutive years, her family has been classified as a poor household in the commune; currently, although she has escaped poverty according to new criteria, she is still in the near-poor category, and life is extremely difficult.

Ms. Choi's third son, Lo Van Nhat, unfortunately suffered from congenital hemolytic disease - a disease that forces patients to have blood transfusions for life.

Since discovering her child was sick, once a month, the mother carried her child for more than 200km to the provincial hospital for blood transfusions.

Mac benh tan mau bam sinh - can benh quai ac da khien co the Nhat heo hon, gay mon. Anh: Tung Duong
Suffering from congenital hemolytic disease - a terrible disease that has made Nhat's body wither and thin. Photo: Tung Duong

Travel, accommodation and treatment costs have made the family, which was already difficult, increasingly burdened with debts. There was a time when, due to not being able to manage the money, the family had to take their child for a blood transfusion every 2-3 months.

Many times, even though she was discharged from the hospital, due to a lack of blood supply, the two mothers and daughters had to quietly return in worry. Currently, baby Nhat is in 4th grade but her physique is thin, pale, her skin is gray, and her figure is much smaller than her peers.

For me, passenger cars following winding mountainsides, the smell of disinfectants in the hospital room and needles for blood transfusions have become familiar since I was very young.

Ms. Choi recounted that every time there was a blood transfusion period but it was not given in time, her child's health deteriorated significantly, her skin turned pale, she was exhausted, had difficulty breathing, and was not strong enough to go to school.

Doctors advised the family to take the child to the National Institute of Hematology and Blood Transfusion for more regular blood transfusions. However, with the current situation, taking the child to the provincial hospital is already an overwhelming burden, not to mention long-term treatment in Hanoi.

To treat her child, Ms. Choi's family borrowed more than 100 million VND - a huge amount for a purely agricultural family in a remote border region. Currently, baby Nhat's health is at an alarming level, and she needs periodic monthly blood transfusions to maintain her life.

Information from Mr. Vu Xe Chu - Vice Chairman of the Vietnam Fatherland Front Committee of Muong Nhe commune - said that Ms. Lo Thi Choi's family is in particularly difficult circumstances in the locality.

For many years, the family has devoted all resources to treating Nhat's illness, and now it is completely exhausted.

We hope to receive the attention and sharing of organizations and philanthropists to help the family have conditions to continue treating the baby and save his life," Mr. Chu expressed.

Please send any help to LD26016 to the Golden Heart Charity Fund - 51 Hang Bo, Hoan Kiem District, Hanoi. Account number (STK) 113000000758 at Vietinbank Hoan Kiem Branch, Hanoi; Contact number: 0021000303088 - at Vietcombank Hanoi Branch; Contact number: 12410001122556 - at BIDV Hoan Kiem Branch.

Or send directly to Ms. Lo Thi Choi (Jat's biological mother) Address: Na Pan village, Muong Nhe commune, Dien Bien province.

Duy Dũng
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