Nguyen Le Yen Dan is 19 years old this year, compared to 3 years ago, she has almost no changes and is still a pretty, lovely girl, who often smiles but does not speak. She suffers from Angelman syndrome, a genetic disorder related to abnormalities in the structure of chromosome No. 15, affecting the nervous system and causing serious physical and intellectual impairments. This is an extremely rare syndrome in children with a probability of about 1/12,000 - 20,000 and currently, world medicine still does not have a treatment for this syndrome.
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Ms. Duong had to quit her job at the company and work at home to spend time taking care of her daughter. She admitted something that very few mothers dare to say: "In the first 10 years, sometimes I hated my child. She was the reason I lost my job, lost time, lost strength... family life was tiring...". But then, strangely, Yen Dan was the one who brought her mother back with gentleness. "My child has a very high EQ. I love my mother unconditionally. When my mother scolds, I still hug her and smile. Gradually, I realized that I was healed by this child and she is my angel.
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Anyone who comes into contact with Yen Dan can feel her loving energy. Ms. Duong said living with her child helps her to be less envious, more calm, know how to breathe slower, and look at life differently.
Unlike many families with disabled children who often hide their children to avoid scrutiny, Ms. Duong chose to bring Yen Dan out into the light: To make her children happier, to let the community know more about this rare disease, and also to make mothers in the same situation no longer feel lonely. That is the story of love, a love that is both tiring, brave, and gentle of a mother for her children, and of a special child for this world.
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